Recently I’ve gotten a few Google searches leading to my blog:
Why does Daisy JD think people care about her fire ears?
At the risk of sounding rude, I think people care because my fire ears are top read & searched for posts. I mean, Americans love themselves a good medical mystery-Discovery Health can teach you that with a quick skimming of their programming guide. Mystery Diagnosis. Medical Marvels. Dr. G, Medical Examiner. Untold Stories of the ER.
Anyway. My ears are still a mystery. They are not flaring up as much in the evenings but the latest development is particularly fun- during my long afternoon commutes in the summertime sunshine my ears hurt so badly in the sun/warmth that I feel like I need pain killers when I get inside. They ache, like a horrible burn from a hot stove on your hand. They only turn a tad bit pink, but oh my goodness the burning. I’m considering getting ear muffs for the summertime drive which is nothing short of crazy. I need my fleece ear warmers for bike rides, just to keep the sun off my hearing devices.
My doctors are still confused and since my ears have yet to comply and do their fire thing during day time office hours (to facilitate a deep tissue biopsy) I’m on track to do Grand Rounds during June or July at a large teaching hospital in Chicago. This means each department will be able to see my chart, take a look at my ears and previous photos of them doing their thing, and then sit down to talk about what is going on. Right now the most “liked” theory is that my ears are having some sort of inappropriate rosacea response. Instead of my cheeks flushing, my ears flush.
But lets face it, “inappropriate rosacea” makes it sound like they are cracking dirty jokes in church. Bad ears! So I’m going to attend Grand Rounds and be seen by all the departments and be the topic of conversation.
Maybe in the middle of appetizers & cocktails I can be diagnosed!
Or stop taking horse pills every day. That would be nice too.
They just need to have a biopsy team ride home with you. Heh.
The Bug is getting a “walking EEG” next month to check for seizure activity for a few days. Surely they can hook up something similar for you.
I care about your fire ears. If someone doesn’t, they can suck my imaginary nut.
I really hope that they can figure this out for you. SOON.
Wait, what?! EVERYONE doesn’t come here for the Fire Ears? No, just me..? hmmm
All kidding aside, I’m fascinated by your health journey b/c A) I really do want to hear what’s going on and for you to feel better and B) I’m one of the millions that is obsessed with shows like Mystery Diagnosis and maybe, just maybe, you’ll be on there! And then I can say I knew (um, read..?) you back when (as in, “back when they first caught fire.”)
Love from the girl who wears a different kind of padded underwear for a different kind of riding (um, horses, you dirty pervs),
Sass
I hope it gets solved soon! I’ve had my own ‘fire ears’ of sorts but it’s because of scar tissue and I can only imagine how you feel because it has been driving me crazy!!